What Does AJRR Provide for a PRO System
There are two ways AJRR can help you. One is through a patient-reported outcome (PRO) platform that is inlcuded with your license subscription and the other is offering patient-reported outcome measure (PROM) guidance.
RegistryInsights PRO module
One of AJRR’s goals is to provide the orthopaedic community with national comparative PRO data. To assist AJRR facilities in PRO data capture and deliver a service to store and have on-demand access to the data, AJRR developed a PRO platform within our RegistryInsights module which is available to subscribing partipants as part of their licensing fee. The platform has many features for clinical staff to access their patient data while having the ability to manage and assign PRO surveys electronically via a secure assessment tool. AJRR’s secure assessment tool allows patients to access their surveys by means of the Internet at home or in the clinic to complete the surveys in a convenient manner.
Please note: Currently, AJRR’s PRO platform can be accessed using a PC or tablets and only includes English versions of PRO measures (PROMs). In the future, AJRR may offer non-English versions of measures (if participants express the need for other language surveys).
AJRR’s data system also has the capacity to accept final PROM scores for participating hospitals and practice groups who are collecting PROMs through another method (e.g., PRO collection by their electronic health records (EHR) system or an orthopaedic charting vendor). For example, Epic and other EHR vendors offer PRO platforms in their systems for those who wish to utilize a platform tailored to their individual needs. AJRR collaborates with a number of these vendors to facilitate seamless transfer of PRO data. Check out this licnk for more information on our vendor partners.
If a participant would like to use the AJRR platform for PROM data collection, the participant will need to subscribe to the AJRR RegistryInsights platform. AJRR will provide a Level III PRO platform User Guide and also provide training webinars for new users. The participant will be responsible for managing PRO data collection at their site(s).
Beyond providing a system to capture PRO measures or accessing PRO dashboards, AJRR provides guidance regarding what PROMs your organization may wish to collect, especially for hospitals and practice groups just starting a PRO program. As the National Registry that works closely with the orthopaedic societies and associations, hospitals and surgeons are looking to AJRR for guidance regarding PRO collection. AJRR’s Data Committee, in collaboration with orthopaedic specialty organizations, identified the specific measures that AJRR recommends for national benchmarks.
The recommendation includes utilization of both an HRQL measure (either VR-12 or PROMIS-10 Global Health) and a joint-specific measure (HOOS, JR. and KOOS, JR.). The decision to recommend the instruments was based on AJRR participation in the American Association of Hip and Knee Surgeons’ (AAHKS) Patient-Reported Outcome Summit for Total Joint Arthroplasty that convened in August 2015. Representatives from orthopaedic organizations (AAHKS, AJRR, American Academy of Orthopaedic Surgeons (AAOS), The Hip Society, and The Knee Society), CMS, Yale-New Haven Health Services Corporation Center for Outcomes Research and Evaluation (YNHHSC/CORE), private payers, and other stakeholders participated in the Summit. The Summit’s goal was to obtain a consensus regarding the PRO suitable for total hip and knee arthroplasty performance measures. Additionally, our recommendations are also consistent with the CJR Final Rule.
Although AJRR has recommended PROMs for national benchmarking, AJRR provides a large list of PROMs for hospitals interested in collecting measures other than AJRR’s recommendations. AJRR understands institutions may have in place a long-standing PRO data collection process with specific PRO instruments. As these groups may wish to continue utilizing their preferred PROM, AJRR will provide a repository to warehouse all levels of orthopaedic data in a centralized system. Additionally, a hospital or practice may prefer to use another measure in order to conduct comprehensive analysis at a more granular level. RegistryInsights will allow for aggregated site specific reports detailing the patients and summary results for each PROM supported on the AJRR system, even though national benchmarks and dashboards will not be available for these other measures.