What PRO Measures Do AJRR Collect
The table below lists all the patient-reported outcome measures (PROMs) that AJRR will accept and store in the Registry. AJRR participants have the choice to collect the PROMs that best fit their needs, however PRO national benchmarks will only be available for AJRR’s recommended PROMs (as shown in gold in the table).
AJRR offers HRQL measures and joint-specific measures. Each type of measure assesses different domains of health from the patient perspective. An HRQL yields a global summary of well-being, which can be further delineated into mental and physical health, but is not limited to these domains. For example, some measures, like the SF-36, can also be scored into more specific domains. Beyond the SF-36’s Physical and Mental Summary Component Scores, it has eight subscales (physical functioning, role – physical, bodily pain, general health, vitality, social functioning, role – emotional, and mental health). A disease-specific measure has been designed to address a specific health condition. The majority of disease-specific (or joint-specific) PROMs utilized in orthopaedics were primarily developed for osteoarthritis or rheumatoid arthritis to evaluate treatments for these diseases and to be more sensitive to specific symptoms of these diseases.6-10 Joint-specific PRO surveys may measure a single domain or multiple domains, such as functional status (ability to perform specific activities), pain, symptoms, or patient experience (i.e., patient satisfaction or patient expectation), summaries of which can be found in AJRR's Patient-Reported Outcome Measures Guide, Table 2 on page 9. These measures were developed for each domain subscale to be reported as an individual score for the PROM.